GendersInX.org

Boz's Blog

Boz — Tue, 05 Aug 2008 02:18:37 GMT

Find it here:

http://www.myspace.com/dbozzy

OR

Find me on MySpace and be my friend!

Canice's Blog

Andre — Sun, 03 Aug 2008 18:01:10 GMT

xnister unplugged

Xnister Unplugged is my take on the anomaly that is XXY, my views may differ to what you have learned thus far,but then,aren't we, who are XXY also just that little bit different

You can view Canice's blog at http://xnisterunplugged.blogspot.com/

GendersInX's first anniversary

Andre — Wed, 09 Jul 2008 17:55:43 GMT

Well, here we are after one whole year of talking, ranting, crying, consoling, empathising, encouraging and supporting. This site has really come on it�s own, it has made it�s mark and I may be biased but this site is quite unique from all the other sites what we�ve been with or visited.

People here actually care and want to learn. The latter is the key, to learn about other people in their situations and finally coming together as friends understanding each other. We are each unique in ...

Why GendersInX ?

Andre — Thu, 19 Jul 2007 20:50:26 GMT

When I started GendersInX, I had come from a site that talked about Klinefelter's Syndrome to the most intimate detail. This was XXYTalk.com, I was a moderator there. I had chatted with a lot of people there not just about Klinefelter's but about everything.

In that time, I had met a person with Turner's Syndrome and I was intrigued with her attitude and how similar we actually were even though our conditions are very much different. That got me thinking that there must be more conditions ...

OII's Health and Science Resources Department

Curtis — Sun, 29 Jun 2008 04:28:27 GMT

Sophia Siedlberg and Professor M. Italiano are the directors of OII's Health and Science Resources Department. This important department of the Organisation Intersex International will provide informative articles about intersex health and other materials with a more scientific and academic focus.

Do you have a question about intersex issues? Ask the professor: info@intersexualite.org

Topics that we are considering including are:

Intersex Health

Genetics and Sex Development

Gender ...

A sense of community

Andre — Tue, 24 Jun 2008 05:58:06 GMT

Can anyone say what a community is ?

In the thesaurus, a community is described as a society, a cooperative spirit and as a group of people. It�s historical roots come from communes, such as the ones that were popular in the 1960�s. It was described as a place where people gathered in a sense of co-operation and a willingness to do well by another either through physical or moral means.

Don�t you find it hard to come across a community and actually feel like you belong there ?

I ...

Chromosome Help Station

Andre — Mon, 16 Jun 2008 03:51:13 GMT

This site deals with a comprehensive study of chromosomal anomalies and whence the chromosome comes from. It is an interesting site and hold a lot of information.

I urge everyone to check it out.

http://www.chromosomehelpstation.com/chromosgroups.htm

Advocates for Informed Choice (AIC)

Canice — Sat, 31 May 2008 07:51:52 GMT

Formerly known as the Institute for Intersex Children and the Law! Founded in

2006 through an Equal Justice Works Fellowship, AIC is the first

organization in the country to undertake a coordinated strategy of

legal advocacy for the rights of children with intersex conditions or DSD's

Advocates for Informed Choice (AIC)

Advocacy for Patients with Chronic Illness

Canice — Sat, 31 May 2008 07:37:15 GMT

Where patients can get free information, advice and advocacy services in areas including but not limited to the following:

How to get your own medical records.

How to get and keep health insurance.

How to get health insurance coverage for particular treatments, drugs, and/or therapies.

How to get private disability insurance coverage.

How to get Social Security Disability Income.

How to assert your rights under the Americans with Disabilities Act.

How to assert your rights ...

How GendersInX came about

Andre — Wed, 21 May 2008 03:49:06 GMT

Taken from InterXsites

GendersInX started when I was neck deep into moderation of another site that dealt with Klinefelter�s and all aspects of it. In amongst the many posters, a woman who had Turner�s Syndrome came on to find out what Klinefelter�s was all about. I was amazed on how much we had in common as much as I was interested on our differences in our two syndromes. I wanted to explore that however it would not be appropriate to discuss Turner�s in a Klinefelter�s forum.

I scoured ...

What are Congenital Gender Variations ?

Andre — Wed, 21 May 2008 04:03:17 GMT

Taken from InterXsites

Some of us hear the above title and immediately think this is only for Intersex and �other� conditions.

Not so. Let�s break the wording down.

�Congenital� basically means of what we were born with. When I looked up congenital in the Word documents� thesaurus, they describe it as present at birth, innate, inborn, inherited and hereditary. There is all kinds of Congenital variations including Congenital Heart palpitations, congenital blood disease, congenital ...

Andre's Blog

Andre — Sun, 27 Apr 2008 18:21:43 GMT

I started this blog to link back to GIX and such. This quickly turned out that I can write what I feel and the things I obcerved in life iand in all the different projects I am involved with. I have contact with a lot of people some of which effect me deeply and some that effect others. All are important to me.

Here is the link to my Blog:

interxsites.fresh-blog.net

I hope you enjoy the reads.

Cool online tool

Boz — Thu, 20 Mar 2008 00:50:40 GMT

http://www.visualthesaurus.com/

Here is a cool tool that brings a thesaurus to the mind. Free within a few searches, but can be purchased or subscribed to for a fee.

Our mix of people here.

Andre — Tue, 08 Jan 2008 19:28:12 GMT

I am writing this post with fire in my heart and I�ll tell you why.

It has come to light that most people when faced with a subject of Intersex, automatically think that because they are consorting with those that are that they must be one too. Intersex had never been about a force of being, it is about a freedom to be whomever you feel is most comfortable, a personal choice.

Look at the many types of food we have in our grasp. If your peas and carrots are beside each other does that ...

Seniors Living website

Andre — Sat, 29 Dec 2007 04:57:10 GMT

http://getyoureducationhere.com

What is my site about?...

Senior Living website,Seniors and the Internet

Part Time Jobs for Seniors Everything You Always

Wanted To Know About Senior Living

Bob

ParentsInX.org

Andre — Sun, 16 Dec 2007 18:48:12 GMT

ParentsInX.orgThe Online Community for Parents. Connecting Families with Congenital Gender Variations in Children or thier Parents. Our Parent Support Forum deals with children and Parent issues and concerns. Included are various Congenital Gender Variations with specifics to chromosomal conditions. ParentsInX is a forum to come and relax in the atmosphere of a home. The forum is strictly moderated to ensure the safety of it's members.

New site for Parents

Andre — Sun, 16 Dec 2007 07:56:39 GMT

ParentsInX.org

The Online Community for Parents.

Connecting Families Living with Congenital Gender Variations

in Children or their Parents.

I am proud to announce that this site is now open to Parents. Invited are Parents of a child or children of a Congenital Gender Variation (CGV) or Parents that are a CGV themselves. This site is run by Parents.

The theme is centered around the home life of a Parent and what concerns and issues we encounter to share.

ParentsInX.org is ...

Psychology Basics

Andre — Fri, 23 Nov 2007 21:54:20 GMT

A person I have got gotten to know, opened up her site called Psychology basics. She has an interesting approach to what makes us tick and our outlook on life and what we can do to improve it.

I do believe this site will take off very well and I wish Robyn all good fortune in her endeavor.

http://psychologybasics.forumotion.com/index.htm

Informed Consent, Parental Permission, and Assent in Pediatr

Curtis — Thu, 15 Nov 2007 12:48:19 GMT

Informed Consent, Parental Permission, and Assent in Pediatric Practice

Committee on Bioethics

AN OVERVIEW

Since the 1976 publication of an AAP policy statement on the legal concept of informed consent in pediatric practice, the concept has evolved and become more formal.1 A better understanding now exists as to how physicians should collaborate with patients and parents in making these decisions. Patients should participate in decision-making commensurate with their development; they ...

CARES: Congenital Adrenal Hyperplasia

Curtis — Tue, 13 Nov 2007 02:46:38 GMT

CARES

http://www.every1cares.org/

I have reservations about this group which are ethical and moral. I do not like the fact that this group is basically NOT by people affected. I have issues with pre-natal screening when abortion is presented as a "solution". I also do not agree with early "castration" - that is what I call it.

However, for medical information about the endocrine disorder, it is a good place to start. For actual ethical issues, not reccommended.

Keep Kids Healthy

Andre — Tue, 13 Nov 2007 01:34:33 GMT

www.keepkidshealthy.com/welcome/conditions/turner_syndrome.html

Medical Dictionary

Boz — Tue, 13 Nov 2007 01:00:55 GMT

I often utilize Merriam-Webster Dictionary when I question spelling, my own. So today I used it to look up a word and I saw that this online dictionary allows you to look in a Medical Dictionary.

Find it: www.m-w.com

An unique perspective

Andre — Mon, 12 Nov 2007 16:51:18 GMT

To date GendersInX has made much headway in it's young life. Let's recap on what has been done.

February 2007, GendersinX was born in another server. The server was very limited and the storage even more, so after 31 members and over 1600 posts later, it was time to move to another location but what was apparent, was that there was a need for people to get to know each other in thier perspective condition, what we have in common.

June 2007, GendersInX re-opened it's doors here, in the new ...

KS 47/XXY NEW RESEARCH 10-27-07

Larry — Thu, 01 Nov 2007 14:08:55 GMT

KS&A | Current Studies and Clinical Trials

Reifenstein Syndrome

Andre — Thu, 01 Nov 2007 02:31:15 GMT

Here is something interesting. Read this at http://www.whonamedit.com/synd.cfm/1286.html

Reifenstein syndrome is similar to Klinefelter-Reifenstein-Albright syndrome (aspermatogenesis-gynaecomastia syndrome) but the XY chromosome pattern is normal. It is a male pseudohermaphroditism marked by deficiency of androgen receptors, hypospadias, hypogonadism and gynaecomastia. The affected males are sterile, but germ cells with mitotic activity are present in the testes. It is a familial condition ...

About Support groups

Andre — Sun, 28 Oct 2007 07:18:13 GMT

This is taken from an article in the OII. I thought it best to include it here, since GendersInX is a support group and is ever expanding to bring those little know conditions to the forefront.

The article can be found here : http://www.intersexualite.org/support_groups.html

Terms such as "abnormal", "disorder" and "dysfunction" reinforce negative stigmas that can contribute to negative sense of self. - Esther Morris Leidolf, http://www.mrkh.org/

Support ...

Administration team

Andre — Wed, 19 Sep 2007 18:02:49 GMT

These are the people that are involved at GendersInX.

Peer Support:

A group dedicated to helping out the new members and those of whom have some apprehension in posting thier thoughts.

Peggy (peggy@GendersInX.org)

Justin47xxy (just@GendersInX.org)

bobas56 (bob@GendersInX.org)

Resource personnel :

A group who are well versed in thier own conditions and provide support in said conditions.

Dianne B, PAIS Resource (DianneB@GendersInX.org)

Peggy, AIS Resource (peggy@GendersInX.org)

Curtis, ...

New Category

Andre — Mon, 17 Sep 2007 17:18:46 GMT

Teaching others about us.

Included in this new Category is R&D and Studies.

All too often have I seen researchers come into other sites ans getting the bum-rush. I think that is not only rude but not in our best interest. On the opposite side, I have seen many researchers come in for meaningless study that did not go anywhere at all or studies that were edited to suit the going fashion of the site it was posed on.

In order for others to treat us better, we need to teach them better. ...

New Co-Admin

Andre — Tue, 04 Sep 2007 18:27:51 GMT

I would like to announce that Kimberly will now be filling that position from here on in. Along with her regular duties here, she will help in maintaining this site.

Welcome on board, Kimberly.

Andre

Welcome to the New GendersInX

Andre — Mon, 16 Jul 2007 20:31:27 GMT

Hi Folks;

So, how do you like the new site ?

We had changed over from the easyfreeforums because I was not happy with a lot of the features there including privacy.

This site boasts many features but most of all it has a better security than the other and it can hold more posts without slowing us down.

If any of you have a hard time reading anything, please make it known by sending me a private message and I see to it that we have this resolved.

Andre

The old GendersInX

Andre — Mon, 16 Jul 2007 21:35:27 GMT

The GendersInX site from easyfreeforum will be closed a week from the date of this site's Domain name change.

If you would like to take your topics or posts from that site, you can do so by cutting and pasting it to a word document or directly to here.

When the forum is closed, I will not be able to access it in any shape or form.

Andre

Build it and they will come.

Andre — Fri, 27 Jul 2007 17:26:14 GMT

That might have worked for Kevin Costner in the movie Field of Dreams, but not on GendersInX.

Here we need people to talk about thier conditions in the view of teaching another. Not everyone knows about your particular condition but you do. You may not know it 100%, it is not expected of you to know it all.

We would like to get to know not only you but what you go through. You will find that there are others of different conditions that have gone through practically the same thing.

You ...

You folks are amazing

Andre — Thu, 26 Jul 2007 16:12:25 GMT

Did you know that ?

No only are you dealing with whatever medical issues you have, you are dealing with your own issues to yourself and how you relate to others.

A person not seeing all these issues would have given up a long time ago, but not folks like us. We keep on going and deal with things on a constant basis.

I find that is nothing short of courage, a whole bunch of it. Our conditions are our strength, not a weakness. Sure, we get down about it sometimes and we build friendships ...

Klinefelter's Awareness week

Andre — Tue, 17 Jul 2007 18:43:32 GMT

In association with XXYTalk.com, a blog has been set up for Klinefelter's awareness week starting the third week of March of any given year. It is important that we all make people aware of Klinefelter's not just for the purpose of the general public and of the Medical Profession, but mostly for those who have just dicovered that they have or suspect to have Klinefelter's Syndrome.

Our mission is to deliver awareness of Klinefelter Syndrome (XXY) and the education of those who could have ...